Endo Appt

[Paula]

My Endo appointment did not go as well as I hoped it would. She basically said I have antibodies which indicate Hashimoto's disease, but my TSH level is normal, so they won't do anything about it.
She said I have 2 big nodules, one is as big as the entire lobe...4.8 cm.
I have to find my old biopsy results for her and she'll decide if she is going to biopsy it again.
I also have to go for an iodine scan on my thyroid. I have to set that up...
I don't know what she thinks she'll find...

So, it is just frustrating to be told that I have antibodies that show I have this disease and she tells me to wait until it affects my TSH level more before they'll try to help it at all.

I think after the iodine scan I may go for a second opinion...

[Jojo]

I think a second opinion is always a good idea!

Sorry :hug: Let us know about the iodine test. Hope the biopsy isn't so bad. Are they draining it? (not sure if it's liquid filled?)

[Farah]

That's exactly what I'm going through. My antibodies are elevated, but my other numbers are "normal" so I do nothing to fix it. :(

I'm so sorry that it's going to be a process. :(

[Heather]

Endometriosis? Do you have pain and if so, will they treat that?

[Paula]

Sorry, I meant endocrinologist.

[Jane99]

Paula, I'd seek a second opinion.


Do you know what your TSH was?

They shouldn't just look at your TSH. They should also look at your T3 and T4 (I'm sure they did). Some Endocrinologist will say that anything between 1.0 and 5.0 on your TSH is normal, however, many other Endos will say that TSH needs to be lower. It's a huge controversy in the medical community. Personally, I don't feel better until my TSH is at or below 1.5. My hair starts falling out when it gets over 2.5.

If you leave it untreated, it will eventually begin to effect your thyroid and in return effect your TSH. That's how Hashi's works. Some people can go years and years, while others are effected very rapidly at young ages (like me).

And another thing that Endos forget is that it's typical of Hashimoto patients to go from Hyperthyroid to Hypothyroid several times over the course of the death of your thyroid (and that's exactly what it is, a slow death). That's what's happening to me. I keep going from one extreme to the other. You may get checked again in 3 months and be Hyperthyroid! I just hate that some Endos slack on this because they don't realize how ****ty it makes you feel when your thyroid is out of whack!

Second opinions never hurt, especially with something so serious.

[Sarah]

:hug: I hope you get some answers and relief.